The present study has been conducted on family caregivers of patients with disorders of consciousness admitted to the Neurorehabilitation Unit for severe acquired brain injury of the Salvatore Maugeri Foundation, Telese Terme, Italy. The presence of professionals who are in charge for the care and rehabilitative treatment, and even the active involvement of family caregivers in decisions about rehabilitative goals, might not suffice to relieve family caregivers’ distress. No specific data are yet available on this issue, but on the basis of previous studies it is possible to hypothesize that levels of psychological distress tend to remain high in family caregivers of patients with disorders of consciousness during in-hospital rehabilitation. 4, 11, 13, 15 The present eight-month longitudinal study was aimed to describe social impact and psychological symptoms in primary caregivers whose relatives are affected by prolonged disorders of consciousness, and to assess evolution of such disorders, during the in-hospital rehabilitative phase. To our knowledge, only a few studies specifically addressed caregivers’ psychological problems during in-hospital rehabilitation of patients with disorders of consciousness.
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